Gilly, sorry to hear about your condition. Glad to hear you are recovering. I have a friend(Guyanese) who has Progressive Supranuclear Palsy. I visit him every Friday and I can see his condition deteriorating as times goes on. There's no cure for this. Yesterday my wife and I went to the Mayo Clinic in Rochester MN along with his family and spent about 5 hours understanding what this disease is all about. The brain is an amazing organ. Hopefully, someday there will be some discovery that will help the brain to reproduce the cells affected.
See the info. I sent you about our Institute which specializes in Neurological Disorders.